In August 2019 researchers from the USA published their review of the medical scientific literature to identify experiences, needs, interventions and outcomes for carers of individuals with Alzheimer’s disease or related dementia as they move into this new role following diagnosis. A total of 29 studies met the search criteria and were included in the review. The studies, which were often seen to address more than one topic, were divided into three main categories: (1) family caregiver experiences on receiving the diagnosis (23 studies), (2) needs during the time of transition (18 studies), and (3) interventions to support their transition into the care giver role (5 studies). The time of receiving a diagnosis of Alzheimer’s disease or related dementia appeared to be a critical period in the process of transitioning into a caregiver role. Results showed that the caregiver’s needs following the diagnosis included knowledge and information, emotional and psychological support and assistance with care planning. The researchers concluded that it is important to fully understand the experiences and needs of caregivers as well as effective interventions in order to better support their transition into their new role.
Lee K et al. Transitioning Into the Caregiver Role Following a Diagnosis of Alzheimer’s Disease or Related Dementia: A Scoping Review. Int J Nurs Stud. 2019 Aug;96:119-131.